Dr Rodney Ford's eClinic http://drrodneyford.com Sun, 29 Mar 2015 03:50:03 +0000 en-US hourly 1 Gluten-ZERO-Diet: change our languagehttp://drrodneyford.com/eclinic-news/gluten-zero-diet-change-our-language.html http://drrodneyford.com/eclinic-news/gluten-zero-diet-change-our-language.html#respond Wed, 18 Mar 2015 02:16:05 +0000 http://drrodneyford.com/?p=3044 My recommendation is to change the gluten-language that we have been using. The term “gluten-free” has been used for decades.  However, the meaning of words ‘gluten-free’ have been diluted.  It almost has the connotation of ‘not-much-gluten’.  It has the suggestion that ‘a-little-gluten-does-not-matter’ or ‘you-are-free-to-give-up-gluten-if-you-want-to’. I see so many parents who say that their children are 90-95% […]

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Dr-Rodney-Ford ZERO gluten

Dr-Rodney-Ford ZERO gluten

My recommendation is to change the gluten-language that we have been using. The term “gluten-free” has been used for decades.  However, the meaning of words ‘gluten-free’ have been diluted.  It almost has the connotation of ‘not-much-gluten’.  It has the suggestion that ‘a-little-gluten-does-not-matter’ or ‘you-are-free-to-give-up-gluten-if-you-want-to’. I see so many parents who say that their children are 90-95% gluten -free.  But for excellent health, that is not good enough.  I know that these parents are striving to do the best that they can.  However, they often do not understand the necessity to cut out gluten entirely.

If you get sloppy about your diet, then you will be constantly ingesting small amounts of gluten, that will cause you on-going harm.

Gluten-ZERO-Diet: change our language

A much stronger expression is needed. I have now exchanged the term ‘gluten-free diet’ to ‘gluten-zero-diet’.  Or more simply, Gluten-ZERO.  By using this phrase, I have already seen a change people’s attitude about how they think about eliminating gluten.

I am a pediatrician – so I see a lot of sick children, and a lot of them are gluten-affected. But happily, they get better a lot more quickly off gluten than do gluten-affected adults.  However, I am a strong believer in putting these children on a gluten-zero diet well before they end up with substantial gluten-related harm, and to spare them from years, or even decades, of gluten-related symptoms.  This means making an early diagnosis. That also means putting them on a gluten-zero-diet before they get the severe gut damage of celiac disease.

The big question for the children, their parents, and me is, “How gluten-free does he need to be?” and, “How long does he have to be gluten free?” If you read my early books, I talked about eating gluten to tolerance. But I have completely changed my mind about this. My stance now is firmly zero-gluten – yes ZERO!  So, I say to my patients, “You are going on a Gluten ZERO diet.  That means ZERO gluten.”  Now there is no confusion.


The other language change concerns the concept of “celiac disease” – it is the “disease” part of this phrase that I do not like.  Sure, when someone is ill, and suffering from chronic symptoms, then they are diseased.  But  when they are gluten-zero, and have fully revived, they are now healthy – they are no longer diseased.  So why should they say that they have “celiac disease?” I much prefer to say that these people are “celiacs”, or have the “celiac condition” – but they are no longer diseased.  Having a “disease” label is not a healthy thing, mentally.

I want to see healthy celiac on a gluten-zero diet.

Check out these books all about it

Gluten: ZERO Global by Dr-Rodney-Ford

Gluten: ZERO Global by Dr-Rodney-Ford

By Rodney Ford +

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Posting blogs to Facebookhttp://drrodneyford.com/eclinic-news/posting-blogs-to-facebook.html http://drrodneyford.com/eclinic-news/posting-blogs-to-facebook.html#respond Wed, 04 Mar 2015 02:20:36 +0000 http://drrodneyford.com/?p=3914 Hi, I have written a great many articles, and I have decided to start posting blogs to Facebook. Initially sending this information to the Gluten-Free-Planet (glutenZERO) Facebook page, from my website: http://drrodneyford.com. I will be interested in feedback. Constantly there are new insights to be experienced. The Gluten ZERO life is a journey, with ups and […]

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Dr-Rodney Ford Wheat field

Wheat field

Hi, I have written a great many articles, and I have decided to start posting blogs to Facebook. Initially sending this information to the Gluten-Free-Planet (glutenZERO) Facebook page, from my website: http://drrodneyford.com. I will be interested in feedback.

Constantly there are new insights to be experienced. The Gluten ZERO life is a journey, with ups and downs. People new to the concept of gluten-free feel overwhelm, and anxiety; people a little more along the path wonder what else might be upsetting their body; and people with longer experience can help and nurture others who are following in their steps.

I expect that the Gluten ZERO path will be taken by increasing more people as the burden of gluten-harm gets fully recognised.

One of the big questions that I have investigated is :”When should we adopt a gluten ZERO diet?”

Well, I argue that we are all adversely affected by gluten, and we should all stop now! However, this is controversial!  I wrote a whole book about it (Gluten:ZERO Global: gluten bad for us all”.

It is a bit like smoking tobacco I think. The best time to quit is now.

Gluten can harm: any person, with any symptom at any time. My mission is to help increase gluten-awareness throughout the community. Hence the posting blogs to Facebook.

Dr Rodney Ford

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FREE ebook Crack the Food Allergy Mazehttp://drrodneyford.com/shop/e-books/free-ebook-crack-the-food-allergy-maze.html http://drrodneyford.com/shop/e-books/free-ebook-crack-the-food-allergy-maze.html#respond Wed, 04 Mar 2015 01:04:16 +0000 http://drrodneyford.com/?p=3912 Do you want an expert to help you understand food allergy/ intolerance? Well, this eBook is written for you – so that you can get to grips with the possibility of food allergy/ intolerance. FREE ebook Crack the Food Allergy Maze Dr Rodney Ford has spent his career in medicine helping people overcome their food […]

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Dr-Rodney-Ford Crack food allergy maze

Dr-Rodney-Ford Crack food allergy maze

Do you want an expert to help you understand food allergy/ intolerance? Well, this eBook is written for you – so that you can get to grips with the possibility of food allergy/ intolerance.

FREE ebook Crack the Food Allergy Maze

Dr Rodney Ford has spent his career in medicine helping people overcome their food reactions. He is a gluten and food allergy expert. He has found that in his Clinic, their are lots of people are very confused (and misguided) about how to work out if, and how, they are reacting to foods.

 

  • People are confused between allergy / sensitivity / and intolerance.
  • People are searching for an accurate diagnosis.
  • People are confused about what tests to get and how to interpret them.
  • People are searching for immediate answers.
  • People are feeling so frustrated.

I want to help you find out (on-line) if foods might be making you unwell. Do you wonder if you, or your children, might be getting sick by eating dairy? wheat? gluten? nuts? soy? additives? or something else? I wrote this eBook to help you on your food allergy path. It tells you how you can get through – yes, crack – the Food Allergy Maze. You can now get diagnosed on-line with the eClinic. rad all about it here.

By Dr Rodney Ford

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Web Site upgrade of eClinichttp://drrodneyford.com/eclinic-news/web-site-upgrade-of-eclinic.html http://drrodneyford.com/eclinic-news/web-site-upgrade-of-eclinic.html#respond Mon, 02 Mar 2015 20:44:17 +0000 http://drrodneyford.com/?p=2407 Please note: March 2015 We have again upgraded the whole of the eClinic website. There could still be a few gremlins/bugs in the changeover – we have our team working on this. We will be making it an even better, and low-priced experience. We have kept the fee to just US$9.99, so that lots of people will have […]

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Online eClinic

Online eClinic – a click away

Please note: March 2015

We have again upgraded the whole of the eClinic website.
There could still be a few gremlins/bugs in the changeover – we have our team working on this. We will be making it an even better, and low-priced experience.

We have kept the fee to just US$9.99, so that lots of people will have the opportunity of getting their individualized food allergy/intolerance help.

(we charge a fee to pay for the running of this system, it is not a profit making venture!  The purpose is to spread the word and expertise about food allergy and intolerance).

Thanks for your ongoing support and patience.  If you experience frustration or problems, please let me know. Some people have had delays in the “activation” of their eClinic account. Also, some of the  information links “InfoLinks” have been broken – they should all be working soon.

We also offer you two substantial ebooks free with your eClinic subscription.

Food Allergies: What Symptoms?

Food for Food Allergy (Egg | Dairy | Peanut): How to get started


The concept is an “expert second opinion”

The eClinic is for people who are not yet diagnosed, or people who want a second expert opinion. Once you have had all of your tests, and have a definite diagnosis, then you have already done much of what the eClinic can offer. But having said that, many eClinic customers have been very appreciative of getting my second opinion.

Food allergies and intolerances  are very common

But often misses, and mis-diagnosed.

Doctor Rodney Ford is a food allergy expert. He helps diagnose and manage food allergy and gluten problems. Gluten, wheat, peanut, egg and milk are the most common foods to cause problems. It is important to get fully investigated. Get the right tests and the right interpretation. Get well again.

Cheers

By Rodney Ford

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Bulk postage chargeshttp://drrodneyford.com/shop/books/bulk-postage-charges.html http://drrodneyford.com/shop/books/bulk-postage-charges.html#respond Tue, 16 Dec 2014 22:34:31 +0000 http://drrodneyford.com/?p=3240 We need to charge bulk-postage-charges, because print books cost varying amounts for us to post to you. So, if you are ordering in bulk (more that 2 books), we will ask you to pay a postage surcharge. We will negotiate/ quote this with you by email. Please would you pay for your additional postage by […]

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Print Books by Dr Rodney Ford

Print Books by Dr Rodney Ford

We need to charge bulk-postage-charges, because print books cost varying amounts for us to post to you.

So, if you are ordering in bulk (more that 2 books), we will ask you to pay a postage surcharge. We will negotiate/ quote this with you by email.

Please would you pay for your additional postage by selecting the agreed price.

 

$70 additional postage

Thank you

by  Rodney Ford

 

 

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Gluten-Related Disorder bookhttp://drrodneyford.com/shop/books/gluten-related-disorder-sick-tired-grumpy.html http://drrodneyford.com/shop/books/gluten-related-disorder-sick-tired-grumpy.html#respond Fri, 03 Oct 2014 18:27:29 +0000 http://drrodneyford.com/?p=3219 Dr Rodney Ford believes that we are all at risk from eating gluten: any person, any symptom, any time! In his Gluten-Related Disorder book, he presents stories of 50 families severely affected by gluten. He asks: “Is eating gluten really worth the risk? This is available as a Kindle eBook on Amazon         […]

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Dr-Rodney-Ford Gluten-Related-Disorder

Dr-Rodney-Ford Gluten-Related-Disorder Sick? Tired? Grumpy?

Dr Rodney Ford believes that we are all at risk from eating gluten: any person, any symptom, any time! In his Gluten-Related Disorder book, he presents stories of 50 families severely affected by gluten. He asks: “Is eating gluten really worth the risk?

This is available as a Kindle eBook on Amazon

 

 

 

 

 

 

 

Available in print for $20

Price: $20.00

Gluten-Related-Disorder-sick-tired-grumpy book

I will not remain silent! With over 35 years of experience as a pediatrician, looking after sick children, I have come to the conclusion that much of their sickness stems from their food, and especially from eating gluten. Every day in my Clinic I see babies, children, teenagers and exhausted parents who are suffering from a wide range of illness. Of course, not all of this illness is caused by gluten. But gluten-illness turns out to be a major contributor to chronic ill health. So, this book is devoted to explain all about gluten and the harm it can cause you, your family and your community.

Everyone is at risk from eating gluten: any person, any symptom, any time. Gluten illness is slowly progressive. Symptoms can sneak up on you. You might not be aware of your deteriorating health. Children feel sick, tired and grumpy. Often they are called naughty, or suffer from behavior or learning problems. Dr Ford asked the parents of 50 families affected by gluten to write their stories. He asks: “Is eating gluten worth the risk?

Gluten cannot be digested by any of us, and causes gut inflammation in everyone. It can trigger irreversible autoimmune disease, cause celiac disease, damage nerves, upset the brain, spark skin disease, and much more. But once gluten-damage has become established, it can remain permanently. So… is eating gluten worth the risk?

As Martin Luther King Jr. said: “Our lives begin to end the day we become silent about things that matter”. It is my belief that gluten-harm matters a lot. Therefore, I continue to speak out about it. I have already written many books about the issues surrounding Gluten Syndrome and eating Zero Gluten. My goal is to increase “global gluten consciousness”.

Dr Rodney Ford has spent his career helping people with food allergy and gluten-sensitivity, gluten intolerance. Author of “The Gluten Syndrome” and “Gluten: ZERO Global”
Contents
1. Why another book?
2. Gluten: worth the risk?
3. My first gluten-illness story
4. Naysayers, Cynics & Critics
5. Who is gluten-sensitive?
6. The Mouth
7. The Esophagus
8. The Tummy
9. The Small Bowel
10. The Colon and Rectum
11. The Brain
12. The Skin
13. Growth – Weight and Height
14. Getting Run-down
15. My Clinic Data
16. Resources

Price: $20.00

This book is also available as an ebook – see  http://www.GlutenRelatedDisorder.com

 

Dr Rodney Ford launched his new Gluten-Related Disorder book in October 2014 with a series of presentations in the USA

This is the Outline of his keynote presentation

With over 35 years of experience as a pediatrician looking after sick children, I have come to the conclusion that much of their sickness stems from adverse reactions to the food they are eating, and especially to gluten. Every day in my Clinic I see babies, children, and exhausted parents who are suffering from a wide range of illness, which often turns out to be food allergy/ intolerance. Of course, not all illness is caused by gluten. But gluten-illness is a major contributor to chronic long-term ill health.

I call these children “the sick, the tired and the grumpy!” Their families who come to my Clinic do not choose to be ill: they would rather be healthy. However, they come to see me because I am seen as the Clinic-of-last-resort, as most medical practitioners are reluctant to link illness to adverse food reactions.

My goal is to increase “gluten consciousness”, globally. By this I mean that every medical practitioner, every specialist, every chef, every food server, every café owner, every food manufacturer, every supermarket owner, every farmer and everyone in the community needs to have knowledge about gluten. I want them to know which of the grains are safe, I want them all to be aware of gluten cross-contamination, about appropriate food substitution, and about the serious harm that gluten causes to so many of us.

Gluten-illness can present with almost any symptom, in any body, at any time of life. Gluten illness is a progressive condition, which can creep up on you slowly.

These things matter, and this is why I continue to speak out and write about it.

Here are the 10 points that I am speaking about.

1) Gluten causes a wide spectrum of ill health 

The concept that gluten causes so much sickness to so many people has only been recognized over the last decade. To date, the problem of gluten-sensitivity has not been widely documented. However, the concept of a range of “Gluten-related disorders” has now been put forward and this idea is gaining momentum. The prime reason for the lack of awareness of gluten-harm is because the range of symptoms caused by gluten is so wide. It is a condition that most of the medical world has been unaware of. These people are often sick, tired and grumpy! They are tired and lack energy.

2) One in ten of the population is gluten-sensitive 

Up until recently, a gluten-free diet had been medically restricted to people the diagnosis of celiac disease (also previously known as gluten-sensitive enteropathy). However, celiac disease is now recognized to be just a small part of the spectrum of gluten disorders. Celiac disease is estimated to affect about 1-in-100 people. By contrast, accumulating data indicates that gluten-sensitivity affects at least ten times this number: alarmingly, this means that 1-in-10 adults and children are being harmed by gluten. If all of these people can be identified and put on a gluten-free diet, then their wellbeing would be hugely improved.

3) Diagnosis by Anti-gliadin antibodies (AGA) 

The spectrum of illness and disease that gluten causes is so wide that it is hard to believe. I think that this is the main reason for skepticism. Also, gluten is such an integral part of our western diet that few people are willing to give it up to improve their health. Therefore, until reliable blood tests are available, it will be impossible to confirm that all of these symptoms could be a consequence of adverse reactions to gluten.

However, the Anti-Gliadin Antibody (AGA) test, also called the IgG-gliadin antibody test, is a specific test for gluten-sensitivity. But it has a low sensitivity (meaning that if you have a negative test, then it does not rule out a gluten health problem). More accurate tests are currently under development, but it will take many years for widespread adoption and confidence in these new tests.

4) Evidence that going gluten-free helps so many people 

My book “Gluten-related disorder: sick? tired? grumpy?” has been written by the children and parents who have been adversely affected by gluten. They tell about their experiences in their own words. Their stories have not been modified in any way (other than minor editorial changes). This is a book full of hope and amazing life changes. By telling their stories, these children were excited to be given the chance to make a difference to someone else who was also experiencing their problems.

5) Whole families can be affected 

Are you sick and tired of being sick and tired? Are you irritable and grumpy? There are a number of stories about whole families. Gluten might affect every family member, but in different ways. Any ongoing health problems should be investigated to see if gluten is the culprit. Gluten-sensitivity is a gigantic health problem.

6) You can’t tell unless you test

The idea of testing everyone with chronic symptoms for gluten intolerance/ celiac disease is new. Symptoms from gluten-sensitivity are wide-ranging. From my work, it seems that almost any chronic symptoms can be caused by gluten. This means that it is difficult for you to know if your symptoms are caused by gluten until you get tested for it. So, it is very important to get tested. It is also very important that any previously underlying celiac disease is discovered. A strong recommendation is “do not go gluten-free until you get your blood tests”.

7) Elimination and challenge 

Despite the availability of blood tests for gluten sensitivity, the only real way to find out if gluten is causing you symptoms is to completely eliminate gluten from your diet for three months or more, and see if you get better. And then reintroduce it back into your diet to see if you relapse. The problem with this approach is that it is difficult to be committed to a strict gluten-free diet without the evidence of an abnormal test result.

8) The importance of ZERO gluten 

How strict should your gluten free diet be? I recommend gluten ZERO. Even tiny amounts of gluten can trigger illness. It is also likely that the antibodies that your immune system generates against gluten are harmful, particularly to the brain and nerves. Currently, with FDA ** commercial enterprises are accepting a definition of gluten-free of less than 20 ppm. This is a commercial compromise, which will not serve the community well in the long run.

9) It is not “normal” to be sick 

We are so often told that our symptoms are within “normal” limits. The parents telling about their experiences say they felt fobbed off. They felt that their concerns were not being taken seriously. Unfortunately, many medical practitioners consider grumpy, rundown children, who have tummy pains, to be “normal”. These people had often struggled for years for an answer.   Calling sick children “normal” is not helpful. Categorizing a whole list of common childhood ailments as “normal” denies them any treatment. The labeling of children’s behavior disturbances and their learning problems as “normal behavior” is a disservice to their family.

10) New nomenclature 

The concept of being gluten-sensitive is still a new idea. This is also the view of group who wrote the paper “Spectrum of gluten-related disorders: consensus of new nomenclature and classification” (Fasano et al). Although this nomenclature is new, the disease is old. One of the problems is to find an adequate name to describe gluten sensitivity. To adequately investigate this problem in the medical research arena, a stringent definition is needed. However, in day-to-day medical practice, all that is needed is an awareness that gluten can cause significant harm to your health, and after appropriate testing, a trial of gluten-free can be offered.

Gluten-related disorder: sick? tired? grumpy?

The Kindle ebook version can be viewed at this link: http://www.GlutenRelatedDisorder.com

by  Rodney Ford

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Dr Rodney Ford’s biographyhttp://drrodneyford.com/eclinic-news/dr-rodney-ford-biography.html http://drrodneyford.com/eclinic-news/dr-rodney-ford-biography.html#respond Sun, 21 Sep 2014 05:18:18 +0000 http://drrodneyford.com/?p=3200 Dr Rodney Ford’s biography MB BS. MD. FRACP.  Associate Professor of Pediatrics Dr Rodney Ford’s biography will help you understand why he has written this book “Gluten Related Disorder: Sick? Tired? Grumpy?” Dr Rodney Ford is a specialist medical doctor, a pediatrician with certification in allergy and gastroenterology. (http://www.DrRodneyFord.com).  His philosophy is “diet: not drugs”.  He has seen […]

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Dr-Rodney-Ford

Dr-Rodney-Ford

Dr Rodney Ford’s biography
MB BS. MD. FRACP.  Associate Professor of Pediatrics

Dr Rodney Ford’s biography will help you understand why he has written this book “Gluten Related Disorder: Sick? Tired? Grumpy?

Dr Rodney Ford is a specialist medical doctor, a pediatrician with certification in allergy and gastroenterology. (http://www.DrRodneyFord.com).  His philosophy is “diet: not drugs”.  He has seen too many people given medications for symptoms without considering the possibility of food allergy/ intolerance.

He has been investigating adverse reactions to gluten for over 20 years.  This group of problems is now called “Gluten-related disorder”.  Unfortunately, it turns out that gluten appears to be bad for us all.

Dr. Ford’s purpose – global gluten consciousness. Dr. Ford is wants our communities to know a lot more about the potential harm of gluten.  Countless people have gluten-related disorders – but they are completely unaware of it.  Most of the medical community remains skeptical about gluten harm, requiring more peer-reviewed information. Consequently, there is an urgent need to increase the level of “gluten consciousness”.

Qualifications. Doctor Ford graduated with honors from the University of New South Wales, Sydney in 1974 (MB. BS). He achieved his Fellowship of the Royal Australasian College of Physicians in Paediatrics (FRACP) in 1981; and was awarded his Doctorate of Medicine (MD) in 1982.  He has studied food allergy/ intolerance problems in New Zealand, Australia and the United Kingdom.  Formerly, Associate Professor of Paediatrics, Otago University, New Zealand, he directed the pediatric allergy and gastroenterology clinic at Christchurch Hospital, for more than 15 years. He now directs the ‘Children’s Clinic and Allergy Centre’, a busy allergy and gastroenterology clinic in Christchurch, New Zealand. (http://www.thechildrensclinic.co.nz)

Gluten expert. Dr. Ford is called a “Gluten Expert” because throughout his medical career, with food allergy and intolerances, he has made a special study of gluten-related disorders.  He was first define the term “Gluten Syndrome”, to gather together the wide-ranging illnesses that are associated with gluten, including celiac disease. These conditions are now categorized as “gluten-related disorders”.

Author and speaker. He is a prolific author and international speaker, and has written over a hundred scientific papers including many books.  His series of books on gluten-related disorders include:

“The Gluten Syndrome”  (http://www.glutensyndrome.com)
“Gluten Brains” (http://www.glutenbrains.com)
“Gluten: ZERO Global” (http://www.glutenZEROglobal.com)

His latest book is “Gluten Related Disorder: Sick? Tired? Grumpy?” – has been written to highlight the vast array of illnesses that can be provoked by gluten.

Kindle version “Gluten Related Disorder: Sick? Tired? Grumpy?”

Sick? tired? grumpy?

Sick? tired? grumpy?

Thought to ponder:  Do you (or your family) have any longstanding health problems? If so, how can you know if you would feel a lot better by avoiding gluten?  It is estimated that at least 1-in-10 (10%) people have a gluten-related disorder.  Consequently, about 1-in-5 (20%) of the ill-population, seeing their doctor, are likely to be gluten-affected.  But, how often has your doctor considered a gluten-related disorder as your possible diagnosis? Perhaps never.

Dr Ford says: “Go gluten-zero before it is too late!” (but please get your blood tests first).

by Rodney Ford

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Gluten-related disorder outlinehttp://drrodneyford.com/eclinic-news/gluten-related-disorder-outline.html http://drrodneyford.com/eclinic-news/gluten-related-disorder-outline.html#respond Fri, 19 Sep 2014 05:20:25 +0000 http://drrodneyford.com/?p=3193 Dr Rodney Ford launched his new book in October 2014 with a series of presentations in the USA Gluten-related disorder: sick? tired? grumpy? ebook available at http://www.glutenrelateddisorder.com Outline of keynote presentation by Dr Rodney Ford With over 35 years of experience as a pediatrician looking after sick children, I have come to the conclusion that […]

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Gluten-Related Disorder Cover

Tummy Sore

My-Tummy-Sore

Dr Rodney Ford launched his new book in October 2014 with a series of presentations in the USA

Gluten-related disorder: sick? tired? grumpy?

ebook available at http://www.glutenrelateddisorder.com

Outline of keynote presentation by Dr Rodney Ford

With over 35 years of experience as a pediatrician looking after sick children, I have come to the conclusion that much of their sickness stems from adverse reactions to the food they are eating, and especially to gluten. Every day in my Clinic I see babies, children, and exhausted parents who are suffering from a wide range of illness, which often turns out to be food allergy/ intolerance. Of course, not all illness is caused by gluten. But gluten-illness is a major contributor to chronic long-term ill health.

I call these children “the sick, the tired and the grumpy!” Their families who come to my Clinic do not choose to be ill: they would rather be healthy. However, they come to see me because I am seen as the Clinic-of-last-resort, as most medical practitioners are reluctant to link illness to adverse food reactions.

My goal is to increase “gluten consciousness”, globally. By this I mean that every medical practitioner, every specialist, every chef, every food server, every café owner, every food manufacturer, every supermarket owner, every farmer and everyone in the community needs to have knowledge about gluten. I want them to know which of the grains are safe, I want them all to be aware of gluten cross-contamination, about appropriate food substitution, and about the serious harm that gluten causes to so many of us.

Gluten-illness can present with almost any symptom, in any body, at any time of life. Gluten illness is a progressive condition, which can creep up on you slowly.

These things matter, and this is why I continue to speak out and write about it.

Here are the 10 points that I am speaking about.

1) Gluten causes a wide spectrum of ill health

The concept that gluten causes so much sickness to so many people has only been recognized over the last decade. To date, the problem of gluten-sensitivity has not been widely documented. However, the concept of a range of “Gluten-related disorders” has now been put forward and this idea is gaining momentum. The prime reason for the lack of awareness of gluten-harm is because the range of symptoms caused by gluten is so wide. It is a condition that most of the medical world has been unaware of. These people are often sick, tired and grumpy! They are tired and lack energy.

2) One in ten of the population is gluten-sensitive

Up until recently, a gluten-free diet had been medically restricted to people the diagnosis of celiac disease (also previously known as gluten-sensitive enteropathy). However, celiac disease is now recognized to be just a small part of the spectrum of gluten disorders. Celiac disease is estimated to affect about 1-in-100 people. By contrast, accumulating data indicates that gluten-sensitivity affects at least ten times this number: alarmingly, this means that 1-in-10 adults and children are being harmed by gluten. If all of these people can be identified and put on a gluten-free diet, then their wellbeing would be hugely improved.

3) Diagnosis by Anti-gliadin antibodies (AGA)

The spectrum of illness and disease that gluten causes is so wide that it is hard to believe. I think that this is the main reason for skepticism. Also, gluten is such an integral part of our western diet that few people are willing to give it up to improve their health. Therefore, until reliable blood tests are available, it will be impossible to confirm that all of these symptoms could be a consequence of adverse reactions to gluten.

However, the Anti-Gliadin Antibody (AGA) test, also called the IgG-gliadin antibody test, is a specific test for gluten-sensitivity. But it has a low sensitivity (meaning that if you have a negative test, then it does not rule out a gluten health problem). More accurate tests are currently under development, but it will take many years for widespread adoption and confidence in these new tests.

4) Evidence that going gluten-free helps so many people

My book “Gluten-related disorder: sick? tired? grumpy?” has been written by the children and parents who have been adversely affected by gluten. They tell about their experiences in their own words. Their stories have not been modified in any way (other than minor editorial changes). This is a book full of hope and amazing life changes. By telling their stories, these children were excited to be given the chance to make a difference to someone else who was also experiencing their problems.

5) Whole families can be affected

Are you sick and tired of being sick and tired? Are you irritable and grumpy? There are a number of stories about whole families. Gluten might affect every family member, but in different ways. Any ongoing health problems should be investigated to see if gluten is the culprit. Gluten-sensitivity is a gigantic health problem.

6) You can’t tell unless you test

The idea of testing everyone with chronic symptoms for gluten intolerance/ celiac disease is new. Symptoms from gluten-sensitivity are wide-ranging. From my work, it seems that almost any chronic symptoms can be caused by gluten. This means that it is difficult for you to know if your symptoms are caused by gluten until you get tested for it. So, it is very important to get tested. It is also very important that any previously underlying celiac disease is discovered. A strong recommendation is “do not go gluten-free until you get your blood tests”.

7) Elimination and challenge

Despite the availability of blood tests for gluten sensitivity, the only real way to find out if gluten is causing you symptoms is to completely eliminate gluten from your diet for three months or more, and see if you get better. And then reintroduce it back into your diet to see if you relapse. The problem with this approach is that it is difficult to be committed to a strict gluten-free diet without the evidence of an abnormal test result.

8) The importance of ZERO gluten

How strict should your gluten free diet be? I recommend gluten ZERO. Even tiny amounts of gluten can trigger illness. It is also likely that the antibodies that your immune system generates against gluten are harmful, particularly to the brain and nerves. Currently, with FDA ** commercial enterprises are accepting a definition of gluten-free of less than 20 ppm. This is a commercial compromise, which will not serve the community well in the long run.

9) It is not “normal” to be sick

We are so often told that our symptoms are within “normal” limits. The parents telling about their experiences say they felt fobbed off. They felt that their concerns were not being taken seriously. Unfortunately, many medical practitioners consider grumpy, rundown children, who have tummy pains, to be “normal”. These people had often struggled for years for an answer.   Calling sick children “normal” is not helpful. Categorizing a whole list of common childhood ailments as “normal” denies them any treatment. The labeling of children’s behavior disturbances and their learning problems as “normal behavior” is a disservice to their family.

10) New nomenclature

The concept of being gluten-sensitive is still a new idea. This is also the view of group who wrote the paper “Spectrum of gluten-related disorders: consensus of new nomenclature and classification” (Fasano et al). Although this nomenclature is new, the disease is old. One of the problems is to find an adequate name to describe gluten sensitivity. To adequately investigate this problem in the medical research arena, a stringent definition is needed. However, in day-to-day medical practice, all that is needed is an awareness that gluten can cause significant harm to your health, and after appropriate testing, a trial of gluten-free can be offered.

Gluten-related disorder: sick? tired? grumpy?

The ebook version can be viewed at this link: http://www.GlutenRelatedDisorder.com

by  Rodney Ford

301 redirection to http://drrodneyford.com/shop/books/gluten-related-disorder-sick-tired-grumpy.html

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Grain-free: is it a step too far?http://drrodneyford.com/eclinic-news/grain-free-is-it-a-step-too-far.html http://drrodneyford.com/eclinic-news/grain-free-is-it-a-step-too-far.html#respond Thu, 11 Sep 2014 06:45:24 +0000 http://drrodneyford.com/?p=3184 Increasing numbers of people are adopting a grain-free lifestyle.   However, a grain-free: is it a step too far? The Paleolithic diet (Paleo/ caveman/ stone age) is promoted by many as the diet that has given them the most health benefit. The idea is to replicate the diet eaten by our ancestors, before the dawn of the […]

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Grain-free: is it a step too far?

Grain-free: is it a step too far?

Increasing numbers of people are adopting a grain-free lifestyle.   However, a grain-free: is it a step too far? The Paleolithic diet (Paleo/ caveman/ stone age) is promoted by many as the diet that has given them the most health benefit. The idea is to replicate the diet eaten by our ancestors, before the dawn of the agriculture era, over 10,000 years ago.  The claim is that after millions of years of evolution on this diet, our bodies are still best adapted to these foods. Consequently, the modern and processed foods of dairy products, grains, legumes, processed oils, refined sugar and too much salt are to be avoided.

 Grain-free: is it a step too far?

I would first like to say that I know many people who have adopted a grain-free lifestyle with great benefit.  I have no argument with them.  But an interesting question is: how come they ended up on this path?  Usually it is from personal experience with chronic illness, after trying many other routes to good health.  Usually, they have experienced the benefits of gluten-free. But were still suffering some symptoms, or subsequently relapsed.  They have found that a no-grains-diet works for them. Or even a ketogenic diet.

There is suspicion that the gluten-like storage proteins from all grains (in addition to wheat, rye and barley) can cause symptoms in some people, indistinguishable from gluten symptoms.  To date, over 600 food allergens have been described, and when our immune systems go awry, we can mount an inflammatory response to nearly everything we eat.  We become more at risk for this the older we are, and the longer that we have exposed our bodies to the inflammatory effects of smoking, highly processed foods, obesity (promotes low level inflammatory signals), food additives and preservatives, pollutants, antimicrobial drugs, chronic stress, repeated infections …

However, I ask you to have a look at the people that I see in my clinic. Children come to get help for a wide range of problems.  Yes, I am sure that most would respond well to a Paleolithic diet.  Yes, processed foods are laden with salt, fat and sugars which will be making them unwell with chronic underlying inflammation. Yes, they need to change what they are eating to get well again.  But what steps should they take.  My answer is “baby steps”.

The first step is gluten-free.

In my opinion, the first dietary step is a gluten-free diet.  But before that it is important to do comprehensive blood tests: looking for non-dietary disease; looking for celiac disease and gluten-sensitivity; and looking for another food allergy and intolerances.

Gluten is an inflammatory protein and at least 10% of us react enough to it to cause us symptoms. Transition to a gluten-free diet is relatively easy with a bit of coaching (that is why we wrote the book: “Going gluten-free – how to get started” .

But takes a mental effort to start reading food labels, allergen warnings and understand ingredients.  Most people eat food by habit, by price and by taste/texture.  We all love fat, sugar and salt!  In my experience, the children and families cope with the change to gluten-free without too much difficulty.  It takes them a month or so to get most foods sorted out.  The rapid change in the children makes it all so worthwhile. The children are compliant because at last they feel well.

Their parents say things like: “I’ve got my old child back again”; “I am amazed how good he is”; “No more sore tummies”; “Her eczema is gone!”; “His behavior is so much better”.

Baby steps work.

Most of these children get better gluten free.  They do not need to have further dietary changes.  Can you imagine if I suggested a paleolithic diet at my initial consultation!  Too hard. Overwhelming.  No buy-in from the family or child.

Gluten-free is well tolerated by these children.  They usually do not feel deprived, and they begin to learn about what foods are made from.  They get to know about ingredients. They find out about cross-contamination.

In the future they may well need to learn about FODMAPs and grain-free.  Joining the gluten-free community is their first step. Grain-free: is it a step too far? This is a journey.

I make the argument for gluten-zero in my book “Gluten: ZERO global

by Rodney Ford

 

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Endoscopy costs hugehttp://drrodneyford.com/eclinic-news/endoscopy-costs-huge.html http://drrodneyford.com/eclinic-news/endoscopy-costs-huge.html#respond Wed, 27 Nov 2013 04:44:09 +0000 http://drrodneyford.com/?p=3161 Endoscopy costs are too much to be sustained as the diagnostic test for celiac. Endoscopy costs huge amounts. Endoscopy costs huge Endoscopy is an expensive medical procedure done to diagnose [or more usually to confirm] the presence of the intestinal damage of celiac disease – and celiac disease is in turn defined by endoscopy (the diagnostic […]

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Endoscopy costs huge

Endoscopy costs huge

Endoscopy costs are too much to be sustained as the diagnostic test for celiac. Endoscopy costs huge amounts.

Endoscopy costs huge

Endoscopy is an expensive medical procedure done to diagnose [or more usually to confirm] the presence of the intestinal damage of celiac disease – and celiac disease is in turn defined by endoscopy (the diagnostic procedure). This is inter-dependence on each other is what’s known as a tautology. In other words, you cannot officially have celiac disease without endoscopic proof. This drives the business of endoscopy, especially as celiac disease is now recognised as a very common condition.

However, the majority of gluten related illnesses cannot be assessed/confirmed/diagnosed by endoscopy. A negative endoscopy result does not rule out a gluten problem. In fact. most gluten-related diseases have a normal endoscopy result.

Nowadays, the blood tests that pick up intestinal damage are more accurate than endoscopy. These tissue-damage blood tests are: tTG (tissue TransGlutaminase), DGP (Deamidated Gliadin Peptide) and EMA (EndoMesial Antibody). But these tests do not tell you about other gluten-related illnesses.

Finally, endoscopy is very expensive. It costs several thousands of dollars. In the USA that are over 300 million people, of whom 1% have celiac disease. To diagnose them all by endoscopy would cost a lot of money (maybe 30,000,000 x $4,000 = a huge amount of dollars). Why go to such extreme measures? Why spend so much money?

Endoscopy is very useful in many patients, but should not be mandatory for the diagnosis of Celiac disease. In fact, this is now being recognised in the newer guidelines for making a diagnosis of celiac disease ( the “Joint BSPGHAN and Coeliac UK Guidelines for the Diagnosis and Management of Celiac Disease in Children” http://www.medscape.com/viewarticle/811355_2?nlid=36263_455). With a statement that if the tTG is very high, then a biopsy may not be needed, as well as the high tTG the EMA+ and patient either DQ2 or DQ8, the diagnosis is confirmed without the need for a duodenal biopsy.

By Rodney Ford

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