Who gets gluten-related headaches?

Who gets gluten-related headaches?

Who gets gluten-related headaches?

I asked this question on our Facebook page: “Who gets gluten-related headaches?”

 I told these two case histories:

1) ” I have just seen a dad of one of my patients. He has had severe headaches for years and years and no one has been able to get to the bottom of it. Because of family circumstances, he decided to go gluten free. He has been gluten zero for the last 4 months, and after a week his headaches went and he has not had any since.”

2) “I saw a 20-year-old boy who had been troubled with headaches for 4 years. He had a huge number investigations from the neurologists including x-ray imaging, and been on lots of different medications, but to no avail. He came to see me as a person of last resort. Of course I’ve done all of his gluten celiac markers. I have told him to go gluten zero and see. Hopefully today he is feeling a lot better.

 Here are the more than 40 Facebook replies that were posted (I have removed all names). As you will read, headaches and gluten are closely gluten-related for a lot of people.  Of course, not all headaches are gluten-related .

 Who gets gluten-related headaches?

* I have been there. Migraines have subsided since being diagnosed and changing my diet. I have had a lot of people tell me that infections and constant illness has been lessened greatly after cutting gluten from their diet. It is still amazing to me how one allergy can affect so much of your body’s processes! I would have constant sickness before I was diagnosed that normally would not even be allergy related.
* I get extremely bad headaches. 20-25 minutes after ingesting gluten my jaw bones loosen and I know from experience how bad it is going to be. Then my speech starts to slur and my motor skills decrease. 40-50 minutes after I ingest gluten I pass out in the fetal position. When I wake from my forced nap 45-100 minutes later I have a migraine and stomach pains, and my mood and attitude is horrendous, I turn into a jerk for a while. That part sucks, I hate being an a-hole and gluten turns me into one. Yet another reason to stay gluten zeroed.
* Headaches reduced to practically zero since gf.
* Rarely had migraines, but I do have less headaches. A friend of mine only had migraines as a symptoms of celiac.
* It’s a neurotoxin in my books! My daughter had headaches prior to GF and it is one of our markers to identify if she has had gluten-contaminated food.
* I get migraines if glutened and had them all the time when eating gluten. Since gf, none unless I get glutened.
* I am. Been strictly GF for just over a year. I get headaches that feel like my brain and spinal cord in my neck are swelling. If it didn’t happen so often (several times a wk sometimes) I’d worry it was meningitis. I also get cluster like headaches, and on rare occasions headaches that begin with back tension and reach migraine level status. I also have had the chronic, tight, clamping down muscle pain since high school, and the mouth sores that began around 10 yrs or more ago. Immediately after going GF I had a bit of a honeymoon period. Then the symptoms began to return, but less severe. Finally about 2 months ago I went completely grain free. This only helped a little, so about 2 wks ago I eliminated dairy and eggs as well. I’m still get symptoms, but still have more improvement.
* Unfortunately going gluten zero did not help my migraines and after a small bleed 2 years ago that did not require surgery and a week in ICU because the migraine was so bad I was placed on medication and I have had only had 2 break through headaches since. My neurologist promised me he would help me no longer suffer from migraines which I have had most my life and thank God he did. Love that man  And he talks in the softest voice just in case you have a headache. I was hoping going gluten zero would have helped them.  (Rodney Ford: Yes, not all headaches are caused by gluten or food reactions).
* The worst part of my reaction to gluten is the blinding migraines that last at least 24-36 hours. I still get occasional headaches from seasonal allergies, but they are very different. The migraines are what led my doc to investigate gluten.
* Migraines are devastating. I can sometimes feel the inflammation process all over my body. I get brain fog and become so irritable it’s scary. I can rationalize that the irritability is from inflammation, but it’s still difficult to tame. The muscle lock down for me is the worst. Knots every where and stretching and rubbing do nothing to help.
* I feel for anyone with chronic migraines. I think they are absolute torture.
* I’ve suffered debilitating headaches all my life, mostly migraines. Had cat scans done and put on many different meds to stop them and even pain meds. But nothing has made them go away, just take the edge off, and sometimes nothing gets rid of them. Ugh! I’ve just recently gone gluten free to support my daughter who has celiac disease and knowing what I know about food now I think I’ll try really hard to stay on a gluten free diet. Hope that helps with the headaches.
* I had migraines (with aura) since I was a young child. Except for a few hormonally related ones a year, I rarely get migraines now since going GF (5 years) and if I do get them they are much milder and the aura part is much reduced. In addition, a whole raft of problems I never knew were gluten-related also went away. In fact, it was research into migraines that led me to going GF in the first place – based on an Italian study done with migraine patients.
* My daughter also had severe vertigo and migraines which went away with going GF.
* I am 60 and had migraines since the age of 4. I went gluten zero for other health reasons a year ago and have not had a headache since. Not one!!
* I was diagnosed with celiac earlier this year and have not had a migraine since going GF.
* I had one or two a month too and not one in a year. Only a too much red wine headache a time or two. Lol
* Got rid of my migraines by giving up coffee. Got rid of all the rest of my headaches by going GZ. Had headaches all my life and now only get them from accidental gluten.
* My hubby has gone gluten free for month and same no headaches, he then ate gluten 2 days row and got migraine.
* Me! I don’t have the headaches unless I ‘over-coffee’ myself! I know-it’s my only vice though!!
* I had terrible migraines for years before my doctor suggested I try eliminating gluten. Mine are so much better now, I will still occasionally get one but they are easily controlled and with less serve symptoms. My mother in law glutened me in December and they came back just as strong and I ended up at urgent care getting shots to make it go away! Being gluten zero has helped me tremendously!
*  Yes.. I get an occular migraine from gluten contamination….see the lights. ..get some tummy cramping and have to go to the toilet usually……and go to bed until the lights go… feel like Ive been hit by a truck…and visual distortion…!
* I usually get all those too Dona and then some. Lucky me! Lol!
* I hate them.. they are disabling and scary if you are out.
*  My daughter had a severe migraines that had her in bed in a dark room for hours. So painful to the point of vomiting. Gluten free she has zero headaches!
*  I started getting headaches at 12 years old. I’ve been gluten zero for almost 9 months now. They have gotten much better AND I have not gotten sick once. I used to be sick all autumn, winter and usually spring. Sometimes in the summer, too …
* Yup.. and we’re talking headaches that can last 3-5 days and including full blown migraines at times.. now, they’re still my main indicator that if i get CC’d but i love that they are now an extreme rarity..
* Gluten gives me migraines.
* I used to get migraines almost daily. Once gluten free, only get them if I’m around strong smells for too long.
* I have had migraines & headaches all my life. GZ since April and headaches have mostly gone. Still have had migraine but grain free now (only a few weeks) and feeling much better so cross fingers the migraines have gone too.
* I had headaches everyday of my life, going from headache to migraine and back to headache till I got tested and removed the gluten, now only get them when a poisoning happens, my daughter is the same, it is lovely being headache free.
* Yes, gluten causes a migraine for me but I also get headaches because of other foods and another neurological condition. Gluten causes the worst migraine though.
* As a child the headaches were just blamed on “allergies”… same with the dark circles under my eyes.
* I had migraines for over 30 years and I soon as I went off gluten the migraines went. The only time they’ve come back in the past 2 years was when I did a gluten challenge. I get a very occasional headache now but no migraines, which makes it very easy to stay away from gluten products.
* I’ve had every combination of migraine HA symptoms over the years: visual aura followed by HA, HA only, visual aura only, and in recent years, vertigo attacks that I’m sure are a type of migraine. The vertigo lasts an hour or so and is completely disabling. Sometimes it is followed by a HA and sometimes not. Traditional allergy shots help reduce the frequency of all of these, even though I’ve never tested (+) for wheat on allergy testing. Now that I’m gluten-free, which has only been for the past couple of months, I’m going to see if I can taper off my allergy shots.
* Me! Have suffered migraines my whole life – I thought as a child that I just had a few allergies (chocolate, cheese, citrus fruit, caffeine) but i must have been intolerant to at least wheat if not all grains and certainy all cows dairy wish I had known sooner! It is now the first reaction I get when I have been ‘glutened’ – some foods make me sick, some give me instant headache, some give me arthritic pain… my dad also suffered badly – he took a very purre supplement of feverfew and hasn’t suffered since! Along with a few dietary changes, notably less choc and less gluten than before. I only ever have HAs if I have accidentally poison myself – but if not, never a headache in sight! YAY!
* I had a dull headache every day for the first 48 years of my life until I went Zero Gluten. I went to dozens of docs over the years and they told me that going to school caused my headaches and they gave me prescription drugs (hormone, thyroid, antibiotics, etc) to treat the symptom. I sure wish I knew then what I know now!
*  I had dull headaches every day until I went GF. I think it was connected to my sleep pattern – after cutting out the gluten, I could actually sleep through the night.
* Me too. Dull headaches with intermittent stabbing pains til Gluten zero fixed them. Believed them to be caused by sinusitis , which also disappeared …
*I was plagued by headaches and migraines for years. The doctors did not know the cause and gave me many drugs to try. None worked. I went for acupuncture to try an alternative way to deal with the headache pain. That was the first time a medical professional considered diet and told me to try a wheat free diet. I got tested and I am non-celiacs gluten intolerant and casein intolerant. If I get glutened, I get a headache and my digestive system feels upset which lasts for days
* It was migraine headaches that had me try a new chiropractor and the first thing he did was a complete metabolic panel including testing for food sensitivities. I had a highly positive IgA test for gluten. I use to get 2-3 migraines a week. It took about two months of being gluten free for me to feel better and the headaches to go away but now the only time I get one is if I accidentally get glutened. In fact, it’s been so long since I had a migraine (a couple of years now) that I can’t remember the last time I took my prescription migraine medicine.
by Rodney Ford